Monday, January 19, 2009
We thought we would post a video for baby Maddie since she's still in her Mommy's belly. From what I hear she's been in there a lonng time and her mommy & Daddy (my godparents) are ready to meet her..and so is everyone else that loves her already!!
I love saturday's when mommy is home with me all day and we just hang out and play. She says I'm super silly, and when she wanted me to show her my teeth I got as close as I could. I also managed to get away before she could get my pants on so I enjoyed that time as much as possible.
Wednesday, January 14, 2009
Friday, January 9, 2009
For all of you that follow our blog, or just happen to come across it by chance I want to ask each and every one of you to say a few extra prayers for one little baby. Most everyone knows I work in a pediatricians office, and for the most part we have healthy babies. We have one in particular baby, I'll call him baby E who has a rare genetic disease called Epidermolysis Bullosa (EB for short). His disorder causes blistering and shearing of the skin from even gentle friction. Sometimes just snaps and seams on a sleeper can cause these awful blisters. Baby E is 4 months old and his entire body is covered with these horrible blisters. Daily care for him is like that of a burn patient and he has to wear special dressings that is very time consuming. He has 2 big sisters and a mother that is very involved in his care. Babies with EB are often described to have skin like butterfly wings, its that delicate! There is a Dr. in Cincinnati that treats some forms of it so it is in the works to get him there and maybe some possible comfort measures and treatments. Right now he's being followed closely by Dr. Boyd and specialist Dr.'s in Roanoke. We have all fallen in love w/ Baby E and want to do anything we can to help him. I'm asking all of you that when you say your prayers to say one for him because we all know that our God is the one who can make him the most comfortable and lay his hands around his little body.
Tuesday, January 6, 2009
We all went to my uncle mark & aunt lori's house for new years eve. I had fun playing w/ Hunter, Abbie & Lewis and even managed to sneak ALL the way to the top of the stairs before mommy & aunt lori caught me. I had fun playing in Hunter & Abbie's playroom too!
I didn't make it to 12:00, but Lewis & Abbie stayed up the best they could.